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Table 5 Selected civil society organization HCV activity examples

From: Hepatitis C in Eastern Europe and Central Asia: a survey of epidemiology, treatment access and civil society activity in eleven countries

Category

Activity

Organization(s) involved

Results and/or comments

Awareness raising

National campaign using mass media and celebrities in Georgia

Concerted effort by Georgian Harm Reduction Network, OSF Georgia, Georgia CAB, Medecins du Monde, Hepa+, New Vector and others

Large-scale treatment program implemented

“Demand treatment!” campaign in Ukraine

Concerted effort of 90 CSOs led by Alliance for Public Health

Community-level HCV screening to document prevalence; subsequent national and regionally/locally-funded HCV treatment programs

Mobilization

HCV advocacy and policy brief research and dissemination in 11 countries

Eurasian Harm Reduction Network; Kyrgyz Harm Reduction Network; Andrey Rylkov Foundation (Russia; Treatment Preparedness Coalition (Russia); Alliance for Public Health

Evidence compiled for awareness-raising and advocacy activities

Drug registration, pricing, clinical trial and early access issue negotiation at EECA level

EECACommunity Adivsory Board meetings addressing AbbVie, BMS, Gilead, Janssen and Merck Sharp & Dohme

Inclusion of simeprevir on the Russian “List of Vital and Essential Medicines” and removal of telapravir, which was included due to industry price reduction (market segmentation) despite being obsolete

Advocacy

DAA price reduction negotiation in Ukraine

Alliance for Public Health

USD 750 for a 12-week sofosbuvir course; USD 900 for a 12-week sofosbuvir/ledipasvir course

National treatment guideline modification and program endorsement advocacy neogtiations

 

Inclusion of DAAs in national treatment guidelines and establishment of a national and over 15 regional treatment programs; government procurement of sofosbuvir

Testing and treatment

HCV treatment for HIV-HCV coinfected PWID implementation in harm reduction programs in Ukraine

Alliance for Public Health

Global Fund support and DAAprice reduction (above) obtained

Contribution to national HCV guideline development/revision and strategic planning

Multiple CSOs inAzerbaijan, Georgia, Kazakhstan, Kyrgyzstan, Moldova and Ukraine

Supports appropriate policy and program implementation